• Publications
  • Influence
Improving understanding of clinical trial procedures among low literacy populations: an intervention within a microbicide trial in Malawi
BackgroundThe intervention reported in this paper was a follow up to an empirical study conducted in Malawi with the aim of assessing trial participants’ understanding of randomisation,Expand
  • 29
  • 6
  • PDF
Why mothers choose to enrol their children in malaria clinical studies and the involvement of relatives in decision making: evidence from Malawi.
This study was aimed at researching the reasons why mothers enrol their children in malaria clinical research and how family members or relatives are involved in the decision-making process. IssuesExpand
  • 29
  • 3
  • PDF
Trial Participants’ Understanding of Randomization, Double-Blinding, and Placebo Use in Low Literacy Populations
Concerns have been raised about the limits of understanding of consent by clinical trial participants in developing countries. Consequently, this empirical study was conducted in Malawi to assessExpand
  • 19
  • 3
Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents
Background The rise in genomic and biobanking research worldwide has led to the development of different informed consent models for use in such research. This study analyses consent documents usedExpand
  • 35
  • 1
  • PDF
Why do people refuse to take part in biomedical research studies? Evidence from a resource-poor area.
Participants refusal to take part in research is an unpleasant experience that investigators face. This paper highlights some of the reasons why people from resource-poor settings refuse to take partExpand
  • 40
  • 1
  • PDF
Why do individuals agree to enrol in clinical trials? A qualitative study of health research participation in Blantyre, Malawi.
Current literature suggests that therapeutic misconception a belief by participants in a clinical trial that they are in fact simply being given clinical care is common, especially among illiterateExpand
  • 39
  • 1
  • PDF
Indignity, exclusion, pain and hunger: the impact of musculoskeletal impairments in the lives of children in Malawi
Purpose: To develop a conceptual model representing the impact of musculoskeletal impairments (MSIs) in the lives of children in Malawi. Method: A total of 169 children with MSIs (CMSIs), family andExpand
  • 21
  • 1
  • PDF
Routine third party disclosure of HIV results to identifiable sexual partners in Sub-Saharan Africa
The challenges of dealing with disclosure of HIV status cause frustration to health care providers and counselors. This frustration follows from the already known high risk to the third party on oneExpand
  • 15
  • 1
Disseminating research results to research participants and their communities.
There is wide acknowledgement of the need for community engagement in biomedical research, particularly in developing countries. Today, engaging communities has become a critical aspect of planningExpand
  • 15
  • 1
HIV/AIDS reduces the relevance of the principle of individual medical confidentiality among the Bantu people of Southern Africa
The principle of individual medical confidentiality is one of the moral principles that Africa inherited unquestioningly from the West as part of Western medicine. The HIV/AIDS pandemic in SouthernExpand
  • 13
  • 1
...
1
2
3
...