Esi M Morgan DeWitt

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BACKGROUND The increase in therapeutic options for juvenile idiopathic arthritis (JIA) has added complexity to treatment decisions. Shared decision making has the potential to help providers and families work together to choose the best possible option for each patient from the array of choices. As part of a needs assessment, prior to design and(More)
Purpose Currently, there is significant variability in the therapeutic approaches to new onset systemic Juvenile Idiopathic Arthritis (sJIA), as evidenced by surveys using case presentations administered to Childhood Arthritis and Rheumatology Research Alliance (CARRA) members. Understanding the comparative effectiveness of these diverse therapeutic(More)
OBJECTIVE This study's objective was to develop a measure of social health using item response theory as part of the Patient Reported Outcomes Measurement Information System (PROMIS). METHODS After candidate items were generated from review of prior literature, focus groups, expert input, and cognitive interviews, items were administered to youth aged(More)
Purpose The CARRAnet Registry, a multicenter registry of children with rheumatic diseases in the U.S. organized by the Childhood Arthritis Rheumatology and Research Alliance (CARRA), began enrollment in May 2010. Our aims were to describe the characteristics of children with JIA enrolled into the registry to date and to identify characteristics associated(More)
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