• Publications
  • Influence
Ethnic and minority parenting.
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Improving the Quality of End-of-Life Care in the Pediatric Intensive Care Unit: Parents' Priorities and Recommendations
OBJECTIVE. Despite recognition that dying children and their families have unique palliative care needs, there has been little empirical inquiry of parent perspectives to improve the quality ofExpand
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Parental perspectives on end-of-life care in the pediatric intensive care unit
Objective To identify priorities for quality end-of-life care from the parents’ perspective. Design Anonymous, self-administered questionnaire. Setting Three pediatric intensive care units in Boston.Expand
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Difficult conversations: Improving communication skills and relational abilities in health care*
Background: Communication skills and relational abilities are essential core competencies that are associated with improved health outcomes, better patient adherence, fewer malpractice claims, andExpand
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Epidemiology of Death in the PICU at Five U.S. Teaching Hospitals*
Objective:To determine the epidemiology of death in PICUs at 5 geographically diverse teaching hospitals across the United States. Design:Prospective case series. Setting:Five U.S. teachingExpand
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Parent Presence During Complex Invasive Procedures and Cardiopulmonary Resuscitation: A Systematic Review of the Literature
We conducted a systematic review of the literature on parent presence during complex invasive pediatric procedures and/or resuscitation. We identified 15 studies that met our inclusion criteria. AllExpand
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Hope in the Age of Anxiety
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Parent presence during invasive procedures and resuscitation: evaluating a clinical practice change.
RATIONALE Parent presence during invasive procedures and/or resuscitation is a relatively underdeveloped and controversial practice. Much of the concern stems from the apprehension of the medicalExpand
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Family-based intervention improves maternal psychological well-being and feeding interaction of preterm infants.
OBJECTIVE To determine the efficacy of an individualized, family-based intervention with preterm infants and their families. DESIGN Randomized, repeated measures intervention outcome study. Expand
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Matters of Spirituality at the End of Life in the Pediatric Intensive Care Unit
OBJECTIVE. Our objective with this study was to identify the nature and the role of spirituality from the parents' perspective at the end of life in the PICU and to discern clinical implications.Expand
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