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OBJECTIVE Patients and palliative care experts endorse the importance of spiritual care for seriously ill patients and their families. However, little is known about spiritual care during serious illness, and whether it satisfies patients' and families' needs. The objective of this study was to describe spiritual care received by patients and families(More)
PURPOSE We designed this study to examine the end-of-life (EOL) experience in long-term care (LTC) based on input from key stakeholders. DESIGN AND METHODS The study consisted of 10 homogeneous focus groups drawn from a purposive sample of LTC residents (2 groups; total n = 11), family caregivers (2 groups; total n = 19), paraprofessional staff (3 groups;(More)
PURPOSE This study explored aspects of stigmatization for older adults who live in residential care or assisted living (RC-AL) communities and what these settings have done to address stigma. DESIGN AND METHODS We used ethnography and other qualitative data-gathering and analytic techniques to gather data from 309 participants (residents, family and(More)
OBJECTIVES To describe the end-of-life symptoms of nursing home (NH) and residential care/assisted living (RC/AL) residents, compare staff and family symptom ratings, and compare how staff assess pain and dyspnea for cognitively impaired and cognitively intact residents. DESIGN After-death interviews. SETTING Stratified random sample of 230 long-term(More)
PURPOSE There are few empirical studies relating components of long-term care to quality of life for residents with dementia. This study relates elements of dementia care in residential care/assisted living (RC/AL) facilities and nursing homes to resident quality of life and considers the guidance this information provides for practice and policy. DESIGN(More)
OBJECTIVES To evaluate the relationship between pain, dyspnea, and family perceptions of the quality of dying in long-term care. DESIGN After-death interviews. SETTING Stratified random sample of 111 nursing homes and residential care and assisted living facilities in four states. PARTICIPANTS Paired interviews from facility staff and family(More)
BACKGROUND Previous research has demonstrated that employment-based benefits are important for the recruitment and retention of nursing assistants (NAs). PURPOSE The objectives of this study were to describe the availability of benefits offered to NAs and to explore the association between nursing home organizational characteristics and NA benefits using(More)
PURPOSE The purpose of this study was to compare the sociodemographics, self-rated health, and involvement levels of family caregivers of residents with dementia in residential care/assisted living (RC/AL) versus nursing home settings. DESIGN AND METHODS We conducted telephone interviews with the family caregivers most involved with 353 residents of 34(More)
The integration of electronic health records (EHRs) across care settings including residential care facilities (RCFs) promises to reduce medical errors and improve coordination of services. Using data from the 2010 National Survey of Residential Care Facilities (n=2302), this study examines the association between facility structural characteristics and the(More)
BACKGROUND The purpose of the study was to examine both direct and interactive roles of race/ethnicity with patients' characteristics (age, gender, relationship with caregiver, diagnosis, referral source, and payment type) in predicting length of hospice care. METHOD This study included a total of 16,323 patients 65 years of age and older (M(age)=81.4,(More)