Daniele Carrieri

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This book aims to enrich current debates on the ethics of disclosing genetic information. It comprises a collection of essays written by contributors with a range of disciplinary backgrounds: bioethics, genetic medicine, medical anthropology, philosophy, law and sociology, to cite a few. By adopting an interdisciplinary approach, the volume advocates for a(More)
Some scholars contend that genetic medicine is transforming the experience of illness and the social category of the family - bringing future risks into the present, and potentially strengthening familial biological bonds in light of these shared genetic risks. However, research has shown that genetic information is interpreted and acted upon through a rich(More)
PURPOSE To ascertain whether and how recontacting occurs in the United Kingdom. METHOD A Web-based survey was administered online between October 2014 and July 2015. A link to the survey was circulated via an e-mail invitation to the clinical leads of the United Kingdom's 23 clinical genetics services, with follow-up with senior clinical genetics staff.(More)
This paper explores the views and expectations of patients concerning recontacting in clinical practice. It is based on 41 semi-structured interviews conducted in the United Kingdom. The sample comprised patients or parents of patients: without a diagnosis; recently offered a test for a condition or carrier risk; with a rare condition; with a variant of(More)
Current guidelines on consenting individuals to participate in genomic research are diverse. This creates problems for participants and also for researchers, particularly for clinicians who provide both clinical care and research to their patients. A group of 14 stakeholders met on 7 October 2015 in Exeter to discuss the ethical issues and the best practice(More)
This article explores the views and experiences of healthcare professionals and clinical scientists in genetics about the existence of a duty and/or responsibility to recontact former patients when the genetic information relevant to their health, or that of family members, changes in a potentially important manner. It is based on N=30 semi-structured(More)
Advances in genomics often lead healthcare professionals (HCPs) to learn new information, e.g., about reinterpreted variants that could have clinical significance for patients seen previously. A question arises of whether HCPs should recontact these former patients. We present some findings interrogating the views of patients (or parents of patients) with a(More)
Any journal relies very heavily on the generous work of those who referee papers. The reviewers for Sociology of Health and Illness have a particular reputation for their unstinting helpfulness and consideration to authors. The Editors would like to thank the following people for completing reviews in the year between October 2015 and September 2016. Their(More)
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