OBJECTIVES To develop a model of care coordination for patients living with advanced progressive illness and their unpaid caregivers, and to understand their perspective regarding care coordination. DESIGN A prospective longitudinal, multi-perspective qualitative study involving a case-study approach. METHODS Serial in-depth interviews were conducted,… (More)
BACKGROUND Approximately 600,000 people die in the UK annually, usually after months or years of increasing debility. Many patients with advanced conditions are not identified for appropriate support before they die because they are not seen as having "palliative" care needs. General practice information technology systems can improve care by identifying… (More)
OBJECTIVES Loss of self and the transition to patient-hood have been widely discussed in relation to the experience of advanced illness. Individuals however often maintain identities or selves beyond those demanded by the circumstances of being a patient. This study explores the presentation of this personal identity and interactions between intrinsic and… (More)
Acknowledgements The team would like to thank all those who took part in the study. We are grateful to Dimbleby Cancer Care for funding the study.