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BACKGROUND Providers have been reluctant to disclose patient data for public-health purposes. Even if patient privacy is ensured, the desire to protect provider confidentiality has been an important driver of this reluctance. METHODS Six requirements for a surveillance protocol were defined that satisfy the confidentiality needs of providers and ensure(More)
BACKGROUND There is limited capacity to assess the comparative risks of medications after they enter the market. For rare adverse events, the pooling of data from multiple sources is necessary to have the power and sufficient population heterogeneity to detect differences in safety and effectiveness in genetic, ethnic and clinically defined subpopulations.(More)
  • Nathaniel Jembere, Michael A. Campitelli, Morris Sherman, Jordan J. Feld, Wendy Lou, Stuart Peacock +4 others
  • 2012
BACKGROUND Research has shown that people from higher socioeconomic status (SES) have better hepatocellular carcinoma (HCC) survival outcomes, although no such research has been carried out in Canada. We aimed to assess if an association between SES and HCC survival existed in the Canadian context. METHODOLOGY/PRINCIPAL FINDINGS We conducted a(More)
OBJECTIVE Some phase 1 clinical trials offer strong financial incentives for healthy individuals to participate in their studies. There is evidence that some individuals enroll in multiple trials concurrently. This creates safety risks and introduces data quality problems into the trials. Our objective was to construct a privacy preserving protocol to track(More)
BACKGROUND There is stigma attached to the identification of residents carrying antimicrobial resistant organisms (ARO) in long term care homes, yet there is a need to collect data about their prevalence for public health surveillance and intervention purposes. OBJECTIVE We conducted a point prevalence study to assess ARO rates in long term care homes in(More)
INTRODUCTION In order to monitor the effectiveness of HPV vaccination in Canada the linkage of multiple data registries may be required. These registries may not always be managed by the same organization and, furthermore, privacy legislation or practices may restrict any data linkages of records that can actually be done among registries. The objective of(More)
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