Caroline Anfray

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Copyright laws are intended to protect the rights of authors in their literary, scientific, and artistic works. The recent controversy about the standardized version of the Asthma Quality of Life Questionnaire between Elizabeth Juniper and Eirini Grammatopoulou et al. is an example of the difficulties inherent to copyright faced by developers and users of(More)
For more information, please contact: Caroline Anfray  It is worth mentioning that, in 2007, of 3,000 occasions on which developers, publishers, or users of PRO instruments submitted requests for information or asked for help from the Mapi Research Trust’s PRO Information Support Team,1 38% were questions about copyright or conditions(More)
The Berne Convention and the national laws on intellectual property fully apply to PRO instruments. The identification of and access to an original PRO instrument is often associated with copyright ownership. This is the copyright holder of the instrument who will control its access (distribution and reproduction), its adaptation or modification, and its(More)
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