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Genetic information given to an individual newly diagnosed with a genetic condition is likely to have important health implications for other family members. The task of communicating with these relatives commonly falls to the newly diagnosed person. Talking to relatives about genetic information can be challenging and is influenced by many factors(More)
BACKGROUND The perception of breast cancer risk held by women who have not had breast cancer, and who are at increased, but unexplained, familial risk of breast cancer is poorly described. This study aims to describe risk perception and how it is related to screening behaviour for these women. METHODS Participants were recruited from a population-based(More)
The objective of this study was to assess attitudes and opinions of women declining the offer of cystic fibrosis (CF) carrier screening through a population-based programme in Victoria, Australia. Between December 2009 and May 2011, women declining an offer of CF carrier screening were invited to participate in a questionnaire-based study. Recruitment was(More)
Background Since 1997, the Victorian Colorectal Cancer Family Study (VCCFS) has been studying a large number of individuals who have had colorectal cancer and their relatives. When a genetic mutation is identified by the VCCFS, family members are offered the chance to have genetic testing through a family cancer clinic to learn of their result. Between 17%(More)
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