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Distinct communication patterns during genetic counseling for late-onset Alzheimer's risk assessment.
TLDR
Communication patterns observed reflected the teaching model primarily, with genetic counseling models less frequently used, with the emphasis on biomedical communication may potentially be at the expense of more patient-centered approaches. Expand
Building Systemwide Improvement Capability: Does an Organization's Strategy for Quality Improvement Matter?
TLDR
Examination of how the primary focus of grant-funded QI efforts relates to key measures of grant success and organization-level measures of success in QI and organizational learning suggested that certain organizational strategies may be more successful than others in developing an organization's improvement capability. Expand
A Rapid Systematic Review of Outcomes Studies in Genetic Counseling
TLDR
Results suggest that genetic counseling can lead to increased knowledge, perceived personal control, positive health behaviors, and improved risk perception accuracy as well as decreases in anxiety, cancer-related worry, and decisional conflict, but further studies are needed to evaluate a wider array of outcomes. Expand
Delivery of clinical genetic consultative services in the Veterans Health Administration
TLDR
Both traditional and emerging models for genetic consultation are available in the Veterans Health Administration; however, there is variability in service organization that could influence quality of care. Expand
Developing a Model of Advanced Training to Promote Career Advancement for Certified Genetic Counselors: An Investigation of Expanded Skills, Advanced Training Paths, and Professional Opportunities
TLDR
Previous work related to genetic counselor career advancement, the charge of the CATCGC, the preliminary work in developing a model through which to view genetic counselor advanced training and career advancement opportunities, and the next steps in further developing and disseminating the model are described. Expand
Stakeholders’ views on the value of outcomes from clinical genetic and genomic interventions
TLDR
Uncertainty about value was observed when evidence of proven health benefit was lacking, potential harms outweighed benefits for reproductive outcomes, and outcomes had only personal utility for individuals or family members. Expand
The value of genetic testing: beyond clinical utility
TLDR
Engaging organizational leadership in understanding the various reasons for genetic testing and its value beyond clinical utility may increase adoption of genetic tests to support patient-centered care. Expand
Participation by clinical geneticists in genetic advocacy groups
TLDR
The activities of HCPs in a genetic advocacy group present a variety of practical issues not experienced elsewhere, including ego (reputation), intellectual curiosity, and duty, which is not necessarily a deterrent to collaboration. Expand
Assessing multilevel determinants of adoption and implementation of genomic medicine: an organizational mixed-methods approach
TLDR
Expert panel and key informant strategies can be used to create a backdrop of stakeholder involvement and baseline organizational knowledge within which to plan translation research and to inform strategic planning and policies for adoption and implementation of genetic services in health-care organizations. Expand
A logic model for precision medicine implementation informed by stakeholder views and implementation science
TLDR
A theory-based, context-specific logic model that can be used by health-care organizations to facilitate precision medicine implementation is developed. Expand
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