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Chronic Pain in Childhood and the Medical Encounter: Professional Ventriloquism and Hidden Voices
  • B. Carter
  • Psychology
    Qualitative health research
  • 1 January 2002
TLDR
This article is a report on the experiences of three children with chronic pain and their families that described situations in which their accounts of pain were reinterpreted through a variety of professional lenses, and the children felt that their voices were muted or ignored.
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Living with type 1 diabetes: perceptions of children and their parents.
AIM To explore and describe the experiences of children and their parents living with type 1 diabetes mellitus from diagnosis onwards. BACKGROUND Type 1 diabetes mellitus is a psychologically and…
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Tick box for child? The ethical positioning of children as vulnerable, researchers as Barbarians and reviewers as overly cautious.
  • B. Carter
  • Psychology
    International journal of nursing studies
  • 1 June 2009
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‘One expertise among many’— working appreciatively to make miracles instead of finding problems
Serendipity plays a role in the articles we read and the ways that we chance upon new ideas, and serendipity brought me to appreciative inquiry (AI). AI, at its heart, is about studying, exploring,…
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An exploration of best practice in multi-agency working and the experiences of families of children with complex health needs. What works well and what needs to be done to improve practice for the…
TLDR
'best practice' statements that illuminated 'what works well' in multi-agency working practice that spanned issues including information, decision making, communication, accessibility, collaboration, respect and sharing a common vision are resulted.
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Mothering disrupted by illness: a narrative synthesis of qualitative research.
TLDR
A literature review of qualitative empirical research investigating women's experiences of mothering disrupted by illness found women found themselves unsupported in their mothering role by healthcare professionals, and this may have left them reluctant to broach difficulties they had relinquishing mothering duties when ill.
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Parents' narratives about their experiences of their child's reconstructive genital surgeries for ambiguous genitalia.
TLDR
These early findings help increase awareness of parents' experiences and of the problems and emotional challenges that parents face when their child is born with genital ambiguity.
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Dealing with uncertainty: parental assessment of pain in their children with profound special needs.
TLDR
A number of themes emerged from the data including learning to live with pain, dealing with uncertainty, expression of pain and making decisions as well as an uncertain and complex process requiring parents to draw on skills and knowledge developed over a number of years.
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‘Just kids playing sport (in a chair)’: experiences of children, families and stakeholders attending a wheelchair sports club
Children who use wheelchairs have few opportunities to play sport with their able-bodied peers and siblings. This appreciative, qualitative study explored the experiences of children, families and…
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A pain workshop: an approach to eliciting the views of young people with chronic pain.
TLDR
Five key interlinked themes emerged from the data and each theme is expressed in the words of the young people themselves: 'no one's pain's the same', 'getting on with it', 'it's hard 'cos...', 'keeping with the dream', and 'it depends ... some are OK'.
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