Anna Karin Axelsson

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BACKGROUND Participation is known to be of great importance for children's development and emotional well-being as well as for their families. In the International Classification of Functioning, Disability and Health - Children and Youth version participation is defined as a person's 'involvement in a life situation'. Engagement is closely related to(More)
BACKGROUND Children with profound intellectual and multiple disabilities need support to function in an optimal way. However, there is a limited knowledge about the role of external personal assistants working in the children's home. MATERIALS AND METHODS A mixed method study was performed including qualitative data from interviews with 11 Swedish parents(More)
AIM To culturally adapt and evaluate the psychometric properties of the Young Children's Participation and Environment Measure (YC-PEM) for use by caregivers of Swedish children with and without disabilities, aged 2-5 years. METHODS Thirteen cognitive interviews and two focus groups with caregivers of children with and without disabilities were conducted(More)
PURPOSE Participation throughout one's life plays a significant role for development and emotional well-being. For this reason, there is a need to identify ways to facilitate participation in family activities for children and adolescents with profound intellectual and multiple disabilities (PIMD). METHODS The study design was qualitative and explorative,(More)
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