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In this qualitative inquiry we investigated the conceptualization of family quality of life. Focus groups and individual interviews were conducted with 187 individuals: family members (e.g., parents, siblings) of children with a disability, individuals with a disability, family of children without a disability, service providers, and administrators. Data(More)
Positive behavior support (PBS) is an applied science that uses educational and systems change methods (environmental redesign) to enhance quality of life and minimize problem behavior. PBS initially evolved within the field of developmental disabilities and emerged from three major sources: applied behavior analysis, the normalization/inclusion movement,(More)
BACKGROUND Family quality of life (FQOL), as a family outcome measure of early intervention and other services, has increasingly drawn attention of researchers, policymakers and service providers. Developing an index of family QOL requires a measure suitable for use with multiple family members. The purpose of this study was to test whether mothers and(More)
BACKGROUND Increasing emphasis on family-centred approaches to services and supports for families of children with disabilities has surfaced the issue of accountability for family outcomes. We present a review of literature about the impacts of children with disabilities on families as a backdrop to proposing family quality of life as a concept that(More)
Families who have a member with a disability have long been objects of pity. Society as a whole tends to view the presence of a child with a disability as an unutterable tragedy from which the family may never recover. Researchers and service providers in the field of developmental disabilities have mirrored this societal perception, and tend to view the(More)
BACKGROUND The concept of family quality of life (QoL) has emerged as an important outcome of service delivery for individuals with disabilities and their families. The present study describes the process of developing a tool to measure family QoL. METHODS AND RESULTS A total of 1197 respondents participated in a national field test. Through factor(More)
The status of dental care for individuals with developmental disabilities in Kansas was examined. Dentists, family members, and case managers reported general, but partial, satisfaction with the availability, accessibility, appropriateness, and affordability of such care. Reasons for the results and recommendations for further improvement are discussed.
Data from interviews with 17 families who have a member with mental retardation and problem behavior were reported. The interview was focused on the families' definition of problem behavior, current challenges they face, and successful approaches for helping individuals with problem behavior and their families as well as suggestions from families about what(More)