Anissa Tonberg

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OBJECTIVES To explore the views and experiences of young adults with epilepsy on the risks associated with, and information giving in relation to sudden unexpected death in epilepsy (SUDEP). METHODS In-depth interviews with 27 young adults (aged 18-29 years) with epilepsy. RESULTS Participants reported everyday experiences of seeking to control the risk(More)
OBJECTIVE We examined young adults' responses to information about sudden unexpected death in epilepsy (SUDEP). METHOD Consecutive patients attending a specialist epilepsy clinic, aged 16-30years, with a Hospital Anxiety and Depression Scale (HADS) score of <11, and who had been told about SUDEP at least 2weeks previously, were invited to the study.(More)
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