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OBJECTIVE To assess the validity, reliability, and acceptability of the short form 36 (SF 36) health survey questionnaire (a shortened version of a battery of 149 health status questions) as a measure of patient outcome in a broad sample of patients suffering from four common clinical conditions. DESIGN Postal questionnaire, followed up by two reminders(More)
Quality of life has been defined as "the extent to which our hopes and ambitions are matched by experience." To improve a patient's quality of life through medical care would be to "narrow the gap between a patient's hopes and expectations and what actually happens." Using the above definition as a conceptual basis, we produced a self-administered,(More)
OBJECTIVES To assess the growth of quality of life measures and to examine the availability of measures across specialties. DESIGN Systematic searches of electronic databases to identify developmental and evaluative work relating to health outcome measures assessed by patients. MAIN OUTCOME MEASURES Types of measures: disease or population specific,(More)
OBJECTIVES To assess the reliability, validity, and responsiveness of a new quality of life measure, the patient generated index (PGI) of quality of life, in patients with four common clinical conditions. DESIGN Prospective one year follow up study. SETTING Outpatient departments and four general practices in Grampian, Scotland. SUBJECTS 1746 patients(More)
Objective: To review evidence relating to the measurement properties of multi-item generic patient or self-assessed measures of health in older people. Methods: Systematic literature searches to identify instruments. Pre-defined criteria relating to reliability, validity and responsiveness. Results: 122 articles relating to 15 instruments met the inclusion(More)
OBJECTIVE To evaluate the Patient Generated Index (PGI) for the measurement of individualized health related quality of life in ankylosing spondylitis (AS). METHODS The PGI asks patients to nominate areas of their lives affected by their disease that they consider the most important. Semistructured interviews with AS patients produced a trigger list of(More)
OBJECTIVES To examine the impact of ankylosing spondylitis (AS) on patients across the UK and to identify factors associated with unemployment, absenteeism, and presenteeism. METHODS One thousand patients with AS from 10 specialist rheumatology centres across the UK were invited to participate in a study evaluating a new outcome measure. Patients(More)
Measurement of health-related quality of life (HRQL) is becoming more important in studies of patients with inflammatory bowel disease. The McMaster IBDQ is the most widely used HRQL instrument for these patients. However, its use with patients in the United Kingdom has not been validated. This study develops and validates a UK version of the McMaster IBDQ(More)
OBJECTIVES To review evidence relating to the measurement properties of older people specific self-assessed, multi-dimensional measures of health status. DESIGN Systematic literature searches to identify instruments. Pre-defined criteria relating to reliability, validity, responsiveness, precision and acceptability. RESULTS A total of 46 articles(More)
To evaluate the measurement properties of the EuroQoL EQ-5D and two condition-specific patient-reported outcome measures—the Symptom Severity Index (SSI) and the Urinary Incontinence-Specific Quality of Life instrument (I-QoL)—in women with urinary incontinence. A questionnaire comprising all instruments was completed by women taking part in a clinical(More)