Alice Chieng

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OBJECTIVE Inflammatory arthritis in childhood is variable in terms of both presentation and outcome. This analysis describes disease activity in children with juvenile idiopathic arthritis (JIA) during the first year following presentation to a paediatric rheumatologist and identifies predictors of moderate to severe disability [defined using a Childhood(More)
OBJECTIVES Adolescents with juvenile idiopathic arthritis have demonstrated substantial disagreement with their proxy's assessment of their disability, pain, and well-being. Our objective was to describe the clinical and psychological factors associated with discordance. STUDY DESIGN This analysis included 204 proxy-adolescent (median age, 13 years) dyads(More)
1Paediatric Rheumatology, Great Ormond Street Hospital for children NHS Foundation Trust, Institute of Child Health, London; 2Paediatric Rheumatology, Royal Manchester Children’s Hospital, Manchester; 3Infectious Diseases and Microbiology Unit, Great Ormond Street Hospital, Institute of Child Health, London; 4National Amyloidosis Centre, UCL Medical School,(More)
Methods Subjects were participants in CAPS, which systematically follows children with new inflammatory arthritis. This analysis is limited to 154 parent-adolescent dyads who respectively completed a CHAQ and adolescent CHAQ with 100 mm VAS for pain and WB. Agreement in scores was measured using Bland-Altman plots, with agreement defined as ± 0.25 units(More)
BACKGROUND The prevalence of physical chronic or long-term conditions in adolescents aged 10-24 years is rising. Mobile phone and tablet mobile technologies featuring software program apps are widely used by these adolescents and their healthy peers for social networking or gaming. Apps are also used in health care to support personal condition management(More)
OBJECTIVE there have been few studies of quality of life in childhood scleroderma and these focused predominantly on self-perception and the influence of skin lesions. Our cross-sectional study aimed to describe the influence of childhood scleroderma on physical function and quality of life in relation to clinical and demographic measures. METHODS(More)
OBJECTIVE Patients' beliefs regarding the cause of illness may influence treatment adherence and long-term outcome. Little is known of adolescents' beliefs regarding the cause of JIA. This study aims to identify adolescents' beliefs about the underlying cause of their arthritis at first presentation to the paediatric rheumatology department. METHODS One(More)
This analysis aimed to study the influence of breast feeding on the pattern and severity of juvenile idiopathic arthritis (JIA) at presentation. The association between ever versus never breast feeding and disease severity at onset was compared in 923 children with JIA recruited to the UK Childhood Arthritis Prospective Study at first presentation to(More)
Macrophage activation syndrome (MAS) is a life-threatening complication in juvenile systemic lupus erythematosus(J SLE). We report three cases of MAS in Juvenile SLE which occurred over the last 6 months. Interestingly, in all the 3 cases, MAS occurred acutely at the time of first presentation of lupus. All of them had fever at presentation. Two of them had(More)
Linear scleroderma is a characteristic form of scleroderma that typically affects children. Ocular manifestations may be present, especially when the frontoparietal area of the head is affected. We present the case of a 5-year-old boy with craniofacial linear scleroderma ("en coup de sabre") who developed exudative retinal detachment. Angiographic and(More)